"I think there is something wrong with my child, but our pediatrician keeps saying let's wait until he's 2. I don't want to wait..."
-Mary, Mom to Gage, age 17 months
If you are looking for answers by doctors, evaluations by doctors, and a potential diagnosis by a doctor, this section is for you.
Your child's pediatrician might be able to provide the official evaluation to determine if your child has a delay, and provide a diagnosis.
However, most do not. Instead, most pediatricians will refer you to a specialist to provide the evaluation and diagnosis. This has been a confusing point for parents, especially if the pediatrician pulls out an official looking form and starts asking questions. That form is referred to as a "screening tool," and it isn't the same as an official evaluation.
Here are some FAQ's about getting a diagnosis:
1. Who can provide the official evaluation?
It's often a developmental pediatrician, or a pediatric neurologist. Sometimes a pediatric psychologist can do it.
2. How do I get a referral to a specialist?
Ask your child's pediatrician for a "referral for an evaluation." It may help to find out ahead of time:
-whose recommended in your community
-if your insurance will cover it
You may find that your insurance will cover the evaluation by only one developmental pediatrician in town, and that the other developmental pediatricians aren't covered. That would be helpful information to know prior to requesting the referral.
3. Will I have to wait long to see the specialist?
It depends on the waiting list for that doctor. Some parents wait two weeks, and some wait 6 months or more. If you live within a reasonable distance from the specialist, it helps to let the specialist's office know that you are willing to be called on a moment's notice for any sick cancellations. This has been effective for many parents. One family facing an 8 month wait list was called within a week due to a cancellation.
4. What does the evaluation day look like?
Usually you fill out a packet of paperwork prior to your arrival. You should ask the specialist's office what they want you to bring, such as any screening tool results, or other records from your pediatrician. At the evaluation, the professional will observe your child, speak to your child, and spend time talking with you also.
The specialist may need further testing before making a conclusion, such as bloodwork, or a medical test like an MRI, but that is done on a case by case basis. (My son has never had an MRI or EEG).
5. I'm still trying to decide if a diagnosis is even worth it. Why label my child?
You don't have to pursue a diagnosis. It's up to the individual family, and it's such a sensitive, personal issue.
6. What is the difference between a medical diagnosis and an educational diagnosis?
A medical diagnosis is one that is given by a person in the medical field, such as a developmental pediatrician.
An educational diagnosis is one that is given by the school district for school related purposes.
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